October is an important time for celebrating the achievements, culture, and contributions of the African and Caribbean communities. It's also an opportunity to spotlight health issues that disproportionately affect the Black community, such as sickle cell disease (SCD). As one of the most common genetic blood disorders in the UK, sickle cell impacts thousands of lives, yet there remains a need for greater awareness, support, and education about the condition
What is sickle cell?
Sickle cell disease is a hereditary blood disorder where red blood cells, which are normally round and flexible, take on an abnormal "sickle" shape. These sickled cells can become rigid and sticky, causing blockages in small blood vessels, leading to painful crises, organ damage, and increased risk of infection. Haemoglobin is the substance in red blood cells that is responsible for the colour of the cell and for carrying oxygen around the body.
What are the symptoms?
SCD also leads to chronic anaemia, as the sickle-shaped cells are fragile and break down more quickly than normal red blood cells. SCD also causes severe painful episodes (scd crisis) around the body. The pain occurs when the cells change shape causing the blood cells to clump together causing blockages in the small blood vessels.
Did you know?
- SCD is inhered from both parents.
- SCD can affect anyone but is predominantly in the African and Caribbean backgrounds.
- Approximately 17,500 people have SCD in the UK.
The Challenges and the Need for Awareness
Despite the UK's commitment to screening and care, individuals living with sickle cell disease often face barriers, including delayed diagnoses, mismanaged care during scd crises, and a lack of understanding from the wider public.
Awareness about sickle cell disease can lead to improved treatment and support, and it can help reduce the stigma often associated with genetic conditions.
Three tips to spread awareness
Give blood- Donating blood helps the needed communities with SCD
Get tested- Know your genotype, to help future generations
Spread the word- Use your voice to raise awareness about sickle cell
External Resources:
Overseas Work with Amoke Foundation
